PERSIMUNE data sources
DISCLAIMER: The number of patients presented may only serve as a guide. Actual numbers for a project will depend on inclusion criteria.
Biobank
LabWare
Number of patients:
7766
Content
Contains information on all blodsamples and faecessamples stored in the PERSIMUNE biobank
Geografi
Rigshospitalet
Type of datasource
Direct access to datasource
Update frequency
All Patients are updated every night
Data period
2015 - blodsamples, 2016 - faeces samples


Copenhagen Hospital Biobank (Region Hovedstadens Biobank)
Number of patients:
17880
Content
A list of material stored in Region Hovedstadens biobank
Geografi
Region Hovedstaden
Type of datasource
Data file
Update frequency
Datadump - no regular update
Data period
2010-2015


Bio- and Genom Biobank, Danish Regions (Regionernes Bio- og Genombank (RBGB))
Number of patients:
8837
Content
A list of material stored in Regionernes bio og genombank
Geografi
National
Type of datasource
Data file
Update frequency
Data dump - no regular update
Data period
2010-2015


Biobank of excess specimen material, Department of Clinical Microbiology, RH
Number of patients:
27214
Content
A list of material stored in the KMA (clinical microbiology department)
Geografi
Rigshospitalet
Type of datasource
Data file
Update frequency
Data dump - no regular update
Data period
2008 -


The Danish Cancer Biobank (Dansk CancerBiobank)
Number of patients:
6894
Content
A list of material stored in the Danish Canser Biobank
Geografi
National
Type of datasource
Data file
Update frequency
Data dump - no regular update
Data period
2010-2015


Biochemistry
MEDCOM-Biochemistry
Number of patients:
0
Content
Biochemistry data from all labs in Denmark. Comply with the XRPT01-standard. Connection through Laboratoriesvarportalen.
Geografi
National
Type of datasource
Webservice using Sundhedsdatanettet
Update frequency
Continuously - All Patients are updated within 10-15 days
Data period
Period varies depending on lab, For 2014 and onwards, expected to be complete


Labka2
Number of patients:
146454
Content
Biochemistry results directly from the lab production system in the region
Geografi
Region Hovedstaden
Type of datasource
Direct database connection
Update frequency
Continuously - All Patients are updated at least once a day
Data period
2009 -


Labka historiske data
Number of patients:
35879
Content
A list of historical biochemistry analysis result. Contain a limited set of analysis.
Geografi
Rigshospitalet
Type of datasource
Data file
Update frequency
Data dump - no regular update
Data period
2005-2009


Demography and Diagnoses
Sundhedsdatabanken
Number of patients:
163117
Content
Information on the patients hospital contacts, diagnoses, procedures and demography.
Geografi
National but only data from Region Hovedstaden
Type of datasource
Direct access to datasource
Update frequency
All patients are updated every weekend
Data period
2007 -


Historical patients - PERSIMUNE cohort
MATCH
Number of patients:
3212
Content
Transplant patients registered in the MATCH system
Geografi
Rigshospitalet and Herlev
Type of datasource
Direct access to datasource
Update frequency
Continuously - All Patients are updated at least once a day
Data period
Data starting in 2011


Oncology
Number of patients:
40628
Content
Patients referred to the Oncology department
Geografi
Rigshospitalet
Type of datasource
Data file
Update frequency
Data dump - no regular update
Data period
2005 -


Haematology
Number of patients:
12308
Content
Patients referred to the haematology department
Geografi
Rigshospitalet
Type of datasource
Data file
Update frequency
Data dump - no regular update
Data period
2005-2015


Infectious disease
Number of patients:
27362
Content
A list of patients from Infektionsmedicinsk og reumatologisk afd 2005-2015
Geografi
Rigshospitalet
Type of datasource
Data file
Update frequency
Datadump - no regular update
Data period
Patients in the period 2005-2015


Pediatric - Bone marrow transplant
Number of patients:
550
Content
Pediatric bone marrow transplant patients
Geografi
Rigshospitalet
Type of datasource
Data file
Update frequency
Data dump - no regular update
Data period



Dialysis
Number of patients:
1567
Content
Patients receiving dialysis treatment
Geografi
Rigshospitalet
Type of datasource
Data file
Update frequency
Data dump - no regular update
Data period
2005-2015


Imaging/diagnostics
RIS
Number of patients:
6901
Content
Imaging/diagnostics codes from RIS
Geografi
RH (Rigshospitalet), HVH (Hvidovre), BB (Bispebjerg), FRB (Frederiksberg).
Type of datasource
Direct access to datasource
Update frequency
Continuously - All Patients are updated at least once a day
Data period
2005 -


Medication
EPM3
Number of patients:
Data error from source, awaiting correct updates from CIMT
Content
Information on inpatients medication history.
Geografi
Region Hovedstaden
Type of datasource
Direct access to datasource
Update frequency
Data period
2012 -


Microbiology
Laboratoriesvarportalen-Microbiology
Number of patients:
0
Content
Microbiology data from all labs in Denmark as stored in MIBA. Comply with the XRPT05-standard. Connection through Laboratoriesvarportalen.
Geografi
National
Type of datasource
Webservice using Sundhedsdatanettet
Update frequency
Continuously - All Patients are updated within 10-15 days
Data period
2010 onwards, all labs except from SSI. 2013 onwards, all labs


MADS
Number of patients:
45171
Content
Microbiology results directly from the lab production system in the region
Geografi
Rigshospitalet
Type of datasource
Direct access to datasource
Update frequency
Continuously - All Patients are updated at least once a day
Data period
2005 -


Oncology
PPAS
Number of patients:
24470
Content
Information on oncology patients medication
Geografi
Rigshospitalet
Type of datasource
Direct access to datasource
Update frequency
All Patients are updated every night
Data period
2005 -


Radiation treatment
Number of patients:
54897
Content
Information on patients receiving radiation treatment
Geografi
Rigshospitalet
Type of datasource
Direct access to datasource
Update frequency
All patients are updated every night
Data period
2009 -


Pathology
Laboratoriesvarportalen-Pathology
Number of patients:
0
Content
Pathology data from all labs in Denmark as stored in Patobank. Comply with the XRPT04-standard. Connection through Laboratoriesvarportalen.
Geografi
National
Type of datasource
Webservice using Sundhedsdatanettet
Update frequency
Continuously - All Patients are updated within 10-15 days
Data period
2005 -


Prospective patients - PERSIMUNE cohort
Prospective cohort
Number of patients:
7705
Content
Information on consent given by the patients in the prospective cohort. Consent is registered in Labka when the initial PERSIMUNE blood sample is taken.
Geografi
Rigshospitalet
Type of datasource
Direct access to datasource
Update frequency
Continuously - check for new patients multiple times a day
Data period
2015 -


Vital signs
KISO
Number of patients:
77233
Content
Information on vital signs as blodpresure, pulse, temperature, height, weight etc.
Geografi
Region Hovedstaden
Type of datasource
Direct access to datasource
Update frequency
All patients are updated every weekend
Data period
2013 -


 Definition

Number of patients: Calculated as unique CPR-numbers in a representative table from the source.

Content: The data content from the source.

Geografi: The geographical coverage of the data source.

Type of datasource: The way PERSIMUNE receives the data

Update frequency: How often the data is updated from the data source.

Data period: The timespan of the datasource OR the timespan in which PERSIMUNE receives data.
Some datasources may have data dating further back than the indicated period.
Organisational changes might have changed the coverage of geografi or patientgroups.