PERSIMUNE data sources
DISCLAIMER: The number of patients presented may only serve as a guide. Actual numbers for a project will depend on inclusion criteria.
Biochemistry
MEDCOM-Biochemistry
Number of patients:86715
ContentBiochemistry data from all labs in Denmark. Comply with the XRPT01-standard. Connection through MEDCOM.
GeografiNational
Type of datasourceWebservice using Sundhedsdatanettet
Update frequencyContinuously - All Patients are updated within 10-15 days
Data period2014 and onwards, expected to be complete


Labka2
Number of patients:92535
ContentBiochemistry results directly from the lab production system in the region
GeografiRegion Hovedstaden
Type of datasourceDirect database connection
Update frequencyContinuously - All Patients are updated at least once a day
Data period2009 -


Labka historiske data
Number of patients:35879
ContentA list of historical biochemistry analysis result. Contain a limited set of analysis.
GeografiRigshospitalet
Type of datasourceData file
Update frequencyData dump - no regular update
Data period2005-2009


Microbiology
MEDCOM-Microbiology
Number of patients:82091
ContentMicrobiology data from all labs in Denmark as stored in MIBA. Comply with the XRPT05-standard. Connection through MEDCOM.
GeografiNational
Type of datasourceWebservice using Sundhedsdatanettet
Update frequencyContinuously - All Patients are updated within 10-15 days
Data period2010 onwards, all labs except from SSI. 2013 onwards, all labs


MADS
Number of patients:31844
ContentMicrobiology results directly from the lab production system in the region
GeografiRigshospitalet
Type of datasourceDirect access to datasource
Update frequencyContinuously - All Patients are updated at least once a day
Data period2005 -


Demography and Diagnoses
Sundhedsdatabanken
Number of patients:103378
ContentInformation on the patients hospital contacts, diagnoses, procedures and demography.
GeografiNational
Type of datasourceDirect access to datasource
Update frequencyAll patients are updated every weekend
Data period2007 -


Imaging/diagnostics
RIS
Number of patients:92074
ContentImaging/diagnostics codes from RIS
GeografiRH (Rigshospitalet), HVH (Hvidovre), BB (Bispebjerg), FRB (Frederiksberg).
Type of datasourceDirect access to datasource
Update frequencyContinuously - All Patients are updated at least once a day
Data period2005 -


Medication
EPM3
Number of patients:Data error from source, awaiting correct updates from CIMT
ContentInformation on inpatients medication history.
GeografiRegion Hovedstaden
Type of datasourceDirect access to datasource
Update frequency
Data period2012 -


Pathology
MEDCOM-Pathology
Number of patients:103745
ContentPathology data from all labs in Denmark as stored in Patobank. Comply with the XRPT04-standard. Connection through MEDCOM.
GeografiNational
Type of datasourceWebservice using Sundhedsdatanettet
Update frequencyContinuously - All Patients are updated within 10-15 days
Data period2005 -


Vital signs
KISO
Number of patients:55092
ContentInformation on vital signs as blodpresure, pulse, temperature, height, weight etc.
GeografiRegion Hovedstaden
Type of datasourceDirect access to datasource
Update frequencyAll patients are updated every weekend
Data period2013 -


Biobank
LabWare
Number of patients:4491
ContentContains information on all blodsamples and faecessamples stored in the PERSIMUNE biobank
GeografiRigshospitalet
Type of datasourceDirect access to datasource
Update frequencyAll Patients are updated every night
Data period 2015 - blodsamples, 2016 - faeces samples


Copenhagen Hospital Biobank (Region Hovedstadens Biobank)
Number of patients:17880
ContentA list of material stored in Region Hovedstadens biobank
GeografiRegion Hovedstaden
Type of datasourceData file
Update frequencyDatadump - no regular update
Data period2010-2015


Bio- and Genom Biobank, Danish Regions (Regionernes Bio- og Genombank (RBGB))
Number of patients:8837
ContentA list of material stored in Regionernes bio og genombank
GeografiNational
Type of datasourceData file
Update frequencyData dump - no regular update
Data period2010-2015


Biobank of excess specimen material, Department of Clinical Microbiology, RH
Number of patients:22408
ContentA list of material stored in the KMA (clinical microbiology department)
GeografiRigshospitalet
Type of datasourceData file
Update frequencyData dump - no regular update
Data period2008 -


The Danish Cancer Biobank (Dansk CancerBiobank)
Number of patients:6894
ContentA list of material stored in the Danish Canser Biobank
GeografiNational
Type of datasourceData file
Update frequencyData dump - no regular update
Data period2010-2015


Oncology
PPAS
Number of patients:24048
ContentInformation on oncology patients medication
GeografiRigshospitalet
Type of datasourceDirect access to datasource
Update frequencyAll Patients are updated every night
Data period2005 -


Radiation treatment
Number of patients:26538
ContentInformation on patients receiving radiation treatment
GeografiRigshospitalet
Type of datasourceDirect access to datasource
Update frequencyAll patients are updated every night
Data period2009 -


Historical patients - PERSIMUNE cohort
MATCH
Number of patients:3212
ContentTransplant patients registered in the MATCH system
GeografiRigshospitalet and Herlev
Type of datasourceDirect access to datasource
Update frequencyContinuously - All Patients are updated at least once a day
Data periodData starting in 2011


Oncology
Number of patients:40628
ContentPatients referred to the Oncology department
GeografiRigshospitalet
Type of datasourceData file
Update frequencyData dump - no regular update
Data period2005 -


Haematology
Number of patients:12308
ContentPatients referred to the haematology department
GeografiRigshospitalet
Type of datasourceData file
Update frequencyData dump - no regular update
Data period2005-2015


Infectious disease
Number of patients:27362
ContentA list of patients from Infektionsmedicinsk og reumatologisk afd 2005-2015
GeografiRigshospitalet
Type of datasourceData file
Update frequencyDatadump - no regular update
Data periodPatients in the period 2005-2015


Pediatric - Bone marrow transplant
Number of patients:550
ContentPediatric bone marrow transplant patients
GeografiRigshospitalet
Type of datasourceData file
Update frequencyData dump - no regular update
Data period


Dialysis
Number of patients:1567
ContentPatients receiving dialysis treatment
GeografiRigshospitalet
Type of datasourceData file
Update frequencyData dump - no regular update
Data period2005-2015


Prospective patients - PERSIMUNE cohort
Prospective cohort
Number of patients:4480
ContentInformation on consent given by the patients in the prospective cohort. Consent is registered in Labka when the initial PERSIMUNE blood sample is taken.
GeografiRigshospitalet
Type of datasourceDirect access to datasource
Update frequencyContinuously - check for new patients multiple times a day
Data period2015 -


Definition

Number of patients: Calculated as unique CPR-numbers in a representative table from the source.

Content: The data content from the source.

Geografi: The geographical coverage of the data source.

Type of datasource: The way PERSIMUNE receives the data

Update frequency: How often the data is updated from the data source.

Data period: The timespan of the datasource OR the timespan in which PERSIMUNE receives data.
Some datasources may have data dating further back than the indicated period.
Organisational changes might have changed the coverage of geografi or patientgroups.